Saturday, 21 February 2015

Third Diaversary

Sunday, February 8 marked three years since Amy was diagnosed. 
You can read about her diagnosis story here.

I can't believe it's been three years.  I also can't believe it's been three months since I've blogged.
I think I am more comfortable in our journey that I don't feel the constant need to feel connected to others dealing with diabetes.  There was a time that every evening I was somewhere within the DOC reading about my online friend's lives and how they struggle and most importantly how they deal with diabetes.  I check in every so often, see what everyone is up to, but I really haven't had anything to say lately.

Here is an update:

In November Amy participated in the JDRF Kids for a Cure Awareness day on Parliament Hill in Ottawa, Canada.  It was an amazing, inspiring experience.  Our MP was very interested in what we had to say about Amy's life living with diabetes.  We left her with a scrapbook we made, and information on JDRFs request for addition funds to expand research within Canada.

Amy in front of the Parliament Building
Amy and  Member of Parliament for Labrador, Ms Yvonne Jones


 
Half of the delegates, with the Prime Minster of Canada, Stephen Harper (Amy is second row, third in)

 

In November we also flew to St. John's for her diabetes appointment.  She had bloodwork again for her thyroid.  We don't get A1C results back until we are back home, and disappointingly they did not change.  They were still the same as they were the time before in June.  I'm hoping we have made some improvements this time around.

December saw Christmas come.  We had a nice relaxing break this year.  I took Christmas off so was home with the girls all break.....first time ever!  Amy's sugars ran high for most of the holidays.  Not because she ate too many treats, but mostly because it was so cold that we couldn't get outside to do anything! 



In January our town municipal workers were locked out.  All the snow we had, paired with the cold temperatures, my girls have only been to school about half the number of days they should have.  The school buses have stopped running, grade K and 1 are alternating going to school with grade 2 and 3, so that there isn't too much confusion with all parents having to drop off and pick up their kids.



I'm happy to say that mid February the workers have reached an agreement, but they are still working on cleaning up our roads in one of the snowiest winters we have had in about 20 years.....and we haven't even hit our snowy month yet! February 8 was the third Diaversary.  We celebrated with cake and presents.



In other news, Amy also started using the CGM with her Medtronic pump again.  I'm happy to say that whatever modifications that Medtronic did to their Enlite sensors this fall worked....we have not had ANY of the issues that we had, that led us to stop the CGM for 6 months.  I'm hoping this will give us the boost to get that A1C down into a better range.

Anyone have any ideas for decreasing a breakfast spike, other than pre-bolusing?

What's on the horizon for the spring?  Well, hopefully school gets back to normal soon; March we fly to St. John's again for the Endo visit; April we are going on our very first Disney Cruise; May is the Spring concert and Ballet recital.  Then we are heading into summer!  Let's just hope all that snow is melted by then!




Thursday, 20 November 2014

Kids for a Cure Awarenss Day

WOW!

in less than one week Amy and I will be headed for Ottawa, the capital city of Canada.

Amy was selected as 1 of 40 children from across Canada to participate in JDRF's Kids for a Cure Awareness day on Parliament Hill.

This is a great honor for us. 

We first became involved with JDRF back when Amy was diagnosed in February 2012.  It wasn't a big involvement, but I found them a great source of information.  There are not many children with type 1 diabetes were I live, and I looked to the DOC for comfort, and some sort of feeling that I was doing things "right".  I'd seen the wonderful things people had to say about JDRF and the annual walks, and wished that we could participate in one of the walks, and feel like we were making a difference too.

This past June, our family of four travelled to St. John's, NL and participated in our first walk.  We raised over $1000 and were quite pleased with that amount.




Then in September, we found out we were selected to attend the Kids for a Cure awareness Day.  I'm excited and anxious all at the same time to tell our story.  To show the decision makers of the Canadian Government just how important it is for continued and even expansion of the JDRF Canadian Clinical Trial Network.  That the research done can truly make a difference in the lives of our children.  How it can take away some of the constant worry and hardships.

We often look at our children and think about how diabetes doesn't stop them, and how much they accomplish despite diabetes.....about how diabetes is just something we do, without thinking much about it.  But imagine.  Imagine what their world will be like when there is no diabetes, and how much easier things will be to accomplish without that worry and the constant battle. I know that someday we can make this a reality, and turn Type One into Type None.

On Tuesday, November 25, 2014, my daughter and I, along with 40 other children and their parents, will respectfully tell our stories and HOPE that the Canadian government will do their part to Step up to Cure Type 1 Diabetes.



If you would like to make a donation, you can do so HERE.